‘EAPC Paediatric Taskforce’ - Voor betere samenwerking & kennisdeling in Europa
Al jaren constateren stakeholders uit de kinderpalliatieve zorg lacunes omtrent informatieoverdracht en samenwerking op Europees niveau. Een aantal organisaties, waaronder Stichting PAL, hebben daarom het initiatief genomen om in samenwerking met de EAPC (European Association for Palliative Care) tot structurele verbetering van genoemde knelpunten te komen.
Palliative Care for Children and Young People
Children’s palliative care is an emerging speciality which has many similarities to adult palliative care but also some distinct differences, not least because children’s palliative care is often provided by staff trained in paediatrics, with knowledge of the specific needs of children with a wide range of rare and complex conditions. Children’s palliative care often extends over many years, from the point of diagnosis and involves a multitude of professionals and services that need to work together to meet the child’s developmental, social, spiritual, medical and nursing needs as well as providing support for their family.
Children’s palliative care is increasingly being recognised as a distinct specialty, but we are still a long way from it being provided equitably and sustainably across Europe. In particular support is needed for countries in Europe where children’s palliative care is still struggling to get a foothold and in countries where there is only isolated provision, to ensure that it continues to flourish.
The EAPC Paediatric Taskforce
The EAPC Paediatric Taskforce is a small core group that aims to drive developments for professionals and organisations working in children and young people’s palliative care across Europe.
It aims to ensure that palliative care for children and young people has stronger representation within EAPC so that the EAPC can provide one voice across Europe for palliative care for all age groups. The Taskforce will bring together all those working to develop and sustain children’s palliative care services, to share learning, to develop and share research and lay a strong evidence base for this small but highly specialised area of care.
Aims & objectives
- To bring together the wide range of professionals working to develop children’s palliative care in European countries and provide opportunities for sharing of information, research, education and advocacy.
- To support the development and dissemination of the evidence base in children’s palliative care through identification of specific work streams leading to published guidelines and standards.
- To provide educational opportunities for those working in children’s palliative care through the development of paediatric sessions at EAPC events.
- To support the development of palliative care for children and young people across Europe, through advocacy and awareness-raising, signposting organisations to the support offered by children’s palliative care organisations around the world.
Members of the Paediatric Taskforce
- Dr Franca Benini, Director of Paediatric Palliative Care - Pain Service, University of Padua (Italia)
- Lizzie Chambers, Development Director, Together for Short Lives (UK)
- Dr Finella Craig, Consultant in Paediatric Palliative Medicine, The Louis Dundas Centre, Great Ormond Street Hospital for Children NHS Foundation Trust (UK)
- Dr Julia Downing, Director of Education and Research, International Children’s Palliative Care Network (ICPCN, international)
- Meggi Schuiling-Otten, Director, Stichting PAL Kinderpalliatieve expertise (NL)
In een eerste stap wordt nu gebouwd aan een internationaal netwerk met stakeholders uit alle Europese landen. Heeft u vragen over de taskforce? Mail ons dan op: firstname.lastname@example.org